Hello everyone! Long time no update I know I aint posting much lately I'm sure if you have backread my previous posts my daughter is a handful plus freelancing work. But I have fewer projects so why not make this time a bit useful for my online platform and portfolios.
I am not feeling well since I got infected when my daughter caught a common cold which turned out to be a viral infection. Thanked God though its non-covid as the swabtests turned out negative and we were finally discharge from the hospital. I am recently having chest pains with all this coughing. So I was doing some updating on some online accounts when I was able to get to this link: https://elyssestiles.com/reviews/ it contained one of the books I quite enjoyed working with early last year as it has a very heart warming story and lessons. The author was very patient in working with me especially with the deadlines.
I felt proud to be part of this publication. I can see the great smiles of the kids who got it and how it look so well with the others books in the mini library esp side to side with the all time favorite Disney books.
I get bored easily with less illustrations to look at back when I was a child. Who knew I would be working with books now. Someday hoping to write my own and publish it as well. Ey must save for it, I know hopefully God will allow this dream to come true.
I can still see the post of asking help on her antibiotics. Sadly it wasnt given any help not even a cent.
She was able to make it out though after 1 week at the hospital and with antiobiotics that were costly.
A very happy and bubbly little girl. She would smile at me from a distance. I tried carrying her but sometimes cries and still looks for the people who always are there for her. And I was busy with the hospital and other requirements. So i was also maintaining a distance to not get her anything but then this chubby and healthy looking baby no one knew she will one day succumb to death so early. Many say if it's God time there is none stopping it.
My father arrived Oct. 4th. He was able to assist with taking care of her. My father was changed man. He was calmer and humble looking then before. He spent more time with family then friends. Well maybe due to covid who knows.
Together with my stepmom they had lil baby vaccinated at the nearest health center in the baranggay. She was declined vaccination at the hospital due to covid when she was a few months old.
At 7months and a few days of having high fever. One night she fainted and lost pulse. At that time I was sleeping (I am a csr with American timings).
I could say maybe just maybe I could have saved her with cpr. 😭
My brother woke me up and asked me to call our dad. At that time my stepmom already rushed her to the hospital. But sadly I realized i had his old number. Later on he arrived. My brother was anxious and distraught. My father didnt like how he was reacting and they had a little arguement.
Later on I heard a loud falling object noise near my window went down to check if someone else heard it and see if something fell down. Nothing the nanny of my daughter said. And so i decided to call to check my stepmom. It was her sister who answered the call. She broke down in tears and said Meghan was gone. She didnt make it.
I was in shock. In denial and very surprised. Tears fell down non stop. I went out and told the rest. One brother didnt believe so I called again the same number and it was Papa who answered and told him. Everyone was in tears at home.
Asking why? Asking why not bring her to the hospital and not the clinic? Why at a young age? Why when she looked so healthy?
The next day they brought her body in a lil casket. My stepmom and her other relatives were wailing and mourning.
My other brother said not to go down as I will be exhausted but I just cant be that insensitive. Tears is what i can only offer now. The pain and anguish unexplainable mix feeling.
So the thought entertained me if that happened to me would i be able to move on?
My daughter has leukemia and i am even struggling financially with her daily chemotherapies, laboratories, medicines and necessities. Only God knows for how long I can take it. 2 years is like a very long way ahead and there will always be bumps ahead.
I raise it all up to Papa God and Brother Jesus. I dont understand his plans but i hope it will be a good one. 🙏🥺
May they welcome my baby sister up in heaven. Rest in peace our sweet angel.
The day that my younger brother told me to call the doctor because her case was much worse than a mere anemia. She was on 4 days blood transfusion. Had on and off fever due to SEPSIS. Her weakened immune system wasn't able to fight off 2 kinds of bacteria in her blood. She had to stay at the hospital for another week and another doctor to look at her condition. Her chemo treatment was delayed as well.
At that time I was super worried, had sleepless night and even collapsed at work. I decided to seek advice from HR and they told me that all they can do is let me go. But to be honest if they were as strict as the other companies they will not let me do so. Since I owe the company negative credit leaves that were used during lockdown and the emergency cash advance I need to partially still pay around 760aed. Yet they gracefully lift that and book me a flight home. Owwa was able to handle returning ofws well covering the expenses of the swab test and quarantine hotel. Even booked a free flight to Cebu and again put in a quarantine hotel. That time I spent singing songs of praise and worship to God. Praying for my daughter's full recovery and health restored.
We partially paid 113,000 for her 1 week stay at the hospital. Her final bill came to 207,000 amounting to more than 300,000 php worth of hospital bill. That is even less with Philhealth. It is still pretty high.
My family went all out and borrowed money from family and friends.
The CHAMP from the house of the mayor was approved by 30k. Thanked God but still for the next time they required a voters certificate.
I unfortunately was an Overseas Filipino Worker for 2 years in UAE and have not voted ever since. I didnt thought my registration has such expiry. I am not even updated in paying with Phil health but luckily they allowed us to pay what so it can be updated. It helped a bit with the bills.
Depression sips in as her Chemo therapy is every week bill estimate amounts to 25,000php. As part of her intensive treatment procedure. Her type of cancer is curable but to such amount of medical bills is overwhelming. I am a single mother currently jobless to walk and complete her paperwork. To also personally look after her.
We can't transfer her to a public hospital as one of the foundations I sought help said that they even advice those patients to be transferred elsewhere due to the mixture of old and young patients and long lines. Totally exposing the weaken immune system of the cancer patients. They die from infections rather than the cancer itself.
She had her first chemo therapy on August 12, Wednesday. Her payment to that first chemo is from the donations compiled around 30k. So it is less with Philhealth it is around 25k.
I am still waiting for the medical abstract and protocol from the doc to be submitted to Kythe and other foundations. I even need to go to DSWD as they didn't gave me a social case study that was also required. They told me I need to ask that from PCSO but they told me they dont require such.
DSWD main only accepts provincial request so I had to go to DSWD in labangon so far they gave me 3k as a financial assistance but they also told me their budget is getting low due to covid. Some other asked why only 3k when others got 10 to 15k. That I do not know and maybe because of the interview. As they ask what was my job and other family members job. Sure my father is a seafarer but i still have alot of brothers and sister that needs to finish school. My youngest sister is still 6 months old.
I even cried today because my father said to use the money he sent for my other younger brother's tuition. I felt guilty that my brother's college schooling will be affected. He saw me crying and I asked forgiveness. He told me he is fine to stop for a year if it will extend the life of his niece. He said he will work for now to also help out the family. 😭😭😭😭
